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benign parathyroid tumour...
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Only just seen this.
My best wishes to you Kwilter.
and
Keep on waddling!
Still waiting for referral phone call, but convinced myself to swim and run.
Swimming went really well, got moved up to advanced group and felt great. Was seriously worried about the run home as I generally struggle to get my breathing right anyway. I managed the 5 1/4 miles in roughly the same time as I did 4 weeks ago, but had to take more short walk breaks.
Got to juitsu, warmed down and drank half my choco milk before I got pins and needles in both hands. Paranoid me??? Normally I wouldn't even have noticed, but tonight I was practically timing how long it took for them to get back to normal. All normal now I'm back home and eaten.
Back to waiting for the phone to ring...it's like meeting a new man!
kwilter, like others I've only just seen your thread.
I've never heard of it & can't comment, but you've got plenty from others on here thank goodness.
I just want to wish you all the best. I feel confident from others' comments that things will work out well for you, but I do appreciate how worried you might get or have been already.
All the Best to you.
kwilter,
The pins and needles can be a sign of calcium issues, which would make sense as it would be linked to your thyroid troubles. Mention it to the consultant when you have your referral. My calcium level dipped very very slightly after my op and and my hand and feet had pins and needles in.
I think you're doing really well with your exercise, I remember my own struggles with lethargy and stuff before my tumour was removed.
Good luck!!
Still nothing from Setninel, so called in to the GP surgery to check they'd sent the referral...it went the same day I saw my doc. Not sure if i sure worry more about the swiftness or not. Phoned once I'd got home from work to find they'd shut up shop for the evening. Will try again tomorrow.
Club run tonight. Felt rubbish and stressed before I went out, but sorted myself out enough to go with some other slower runners on the 5 mile route. Took one look at the newly rechristened B@st@rd Hill and wimped out to do something that looked less like a vertical climb. Breathing was awful and every time I got to a hill I could feel my throat contracting, but I'm putting this down to being stressed.
Just want to go to sleep now I'm back, but as Mr K pointed out, I swam/ran on Tuesday and did a 12 mile bike trip yesterday. Still it's our 15th wedding anniversary so I should shower and look alive if not enthusiastic!
Plymouth half in a month and with nothing from the hospital I don't know if I'll still be OK to do it and need to keep upping the mileage or if I'll be pulled from it and can just relax and do short gentle plods.
It's hard to train with an uncertain future but I'd say go for it if you feel like it Just don't beat yourself up over the rubbish runs. We all have them. If you feel rubbish and feel like it's pointless because of an impending op it's hard to motivate. Either way don't stress and enjoy your running.
Still hadn't heard anything by this morning even after I left 2 voicemail messages. So another phone call to patient liaison and they phoned me back to say I can go on May 21st to see someone in "adult lumps and bumps"
race tonight and got tachycardia for about 10 seconds at the start. Didn't take my pulse as I'd got my watch set up for timing the race. How sensible was that?
Did the race anyway promising Mr K I'd stop if it happened again. It didn't and I was fine for the race and since I stopped and got home. Putting it down to stress of the race, but noted it can be a side effect of raised calcium
hey kwilter
e mail me if you need
xx
oops sorry missed your post Hippo. I'll mail you once I've been to outpatients if I may? I'm taking a notebook with all my questions written in it, but I'm sure I'll think of something just as I get on the bus home.
I've had episodes of tachycardia before (years ago) but they've never managed to get an ECG while I was palpitating. I've had resting ECGs which have all come back normal so I'm not unduly worried...unless I should be?
you know where I am
xx
dont think you shoiuld be worried
Big hugs Kwilter will be thinking of you
xx
good luck Kwilter - know how you're feeling as I've got a radiology scan next week after my doc found some dark spots on my thyroid, scary isn't it. You'll be fine.
((((kwilter))))
You'll be back before you see this. Hope it went really well, Kwitler.
Well doncha just love the NHS!
They'd not referred me to the endocrinology department, but to the colorectal specialists instead. Couldn't have got it more wrong if they'd been trying!
Had bloods, tried to get an ultrasound appointment, but was first sent to wrong Xray dept, then got told they couldn't book an appointment then but I had to wait for one in the post.
Now have to wait again for an appointment with the right consultant.
Not happy.
Sorry to hear that the waiting isn't over yet Kwilter. My experience of the NHS this week has been all good, blood tests Monday, results back today, and apparently I'm normal
Hope you don;t have to wait too long for the next appointment.
That sounds like a real pain in the arse. Good job you haven't got elbow trouble.
Indeed SOG. I did a double take when I saw the rectal probes and KY jelly on the table
Just spoke to the Sentinel team who referred me to the hospital. Very apologetic and can't work out how I got sent to the wrong clinic. They'll phone tomorrow once they've spoken to the hospital directly.
probably the bloody computer booking system!
if you dont get a new appointment pronto speak to PALS or the equivalent where you are
After leaving messages, phoning my GP surgery who told me they didn't have the patient liaison service number (I got it from the bottom of a leaflet given me at the surgery, but had left it at home) and picking random volunteer helpline numbers from the phonebook, I finally got a call telling me I had a new appointment with the correct specialist in 2 weeks.
By that time I reckon my bloods should be back, and I might even have had the scan, so the consultant will have something to base any diagnosis on.
I'm off to google his name now.
bloody hell kwilter not good at all.
Does not help one bit with stress levels!
Only just saw this one.
Hang in there and best of luck.