Nothing to do with running (sorry).
We are urgently seeking a bone marrow donor of a specific profile because searches of international registers have failed to locate a matching tissue type.
This is for a friend who is 50% Greek from her mother’s side while her father is 50% Italian and 50% English. It seems that there are very few people with her tissue type who have been registered as donors on the international panel.
If you think you may match this profile - or know anybody who might be - please consider volunteering to have you blood tested for a match.
Feel free to contact me off-list.
Thanks for listening/reading.
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Comments
have been registered for a while, although being 100% welsh i'm unlikely to be of use to your friend - but hopefully someone else.
Why does it matter what nationality either party is?
I think that's right.
I did volunteer for the bone marrow register but they turned me down - too old at one month over 45 at the time of asking.
Its a bit more complicated than just blood groups
Good luck sore toes
whether you are the ethnic group requested above or not, it's still well worth signing up in case someone else needs your bone marrow. There's lots of things they test for, not just your blood group, so you need to have samples taken & sign up to the register.
Anthony Nolan or NBS. You don't need to sign up for both, as they share info (no, i don't know why there are 2 organisations in the UK). You can also sign up when you give blood.
Please have a look - this saves lives.
It's rather bizarre that you don't get paid for giving your blood or bone marrow.
Lots more people would give if they were paid fifty quid or something.
like drug addicts who might potentially carry viruses
The NHS pays a market price for everything else it buys, but yet it expects donors to give body parts and body products for free.
I reckon you shouldnt expect a transplant if you dont give blood
That would be a fairer policy.
Then you would be excused and allowed to be a recipient. As would the under-18s.
But it seems unfair to have a set-up where some adults receive who have no intention of ever contributing, but the donors are unpaid.
If you cant give blood -then fine
but if you can, and choose not to----
Sorry Sore Toes, I don't think my genes are suitable, but I sincerly hope you find your donor.
My mum had her transplant 9 years ago today.
I have been on the Anthony Nolan register since I was 18 (31 now) - and went through the process as a potential match about 8 years ago (didn't work out for whatever reason - nothing to do with me - I like to think they found a better match).
It is soooo important that people sign up for things like this (I also give blood) - just imagine if it was a member of your family....
Having said that, we live in a free society and I absolutely believe in people having the right to say yes or no to these things.
Sore Toes - wishing your friend the best of luck.
Hegs x
From http://www.blood.co.uk/pdfdocs/bonemarrow.pdf:
'As part of our service, we will take out a suitable insurance policy on your behalf, and any loss of earnings and expenses will be met by ourselves.'
Actually there are three bone marrow registers in the UK. The Anthony Nolan Trust is the largest, and was the world's first bone marrow donor register, having been set up in 1975. The National Blood Service also has a donor register, which has been expanded in the last couple of years after Tony Blair was doorstepped by a couple whose child needed a transplant and who thought the NHS should be providing this service. (I don't know why, given the government's penchant for public/private partnerships, that they didn't decide to go into partnership with the Anthony Nolan Trust). The main practical difference between the two is that you have to be a blood donor to be a bone marrow donor for the NBS. There is also a separate Welsh Bone Marrow donor register.
All of these registers share their data, and share it with the rest of the world too; the Anthony Nolan coordinates searches for donors internationally for UK patients in need, and within all three UK registers for foreign patients in need.
Good luck, SoreToes .. I hope there's a donor out there for you.
I don't think he was long out of running.
http://www.runnersworld.co.uk/forum/forummessages.asp?URN=4&UTN=21626&last=1%20&%20SP%20=%20588681270672638613402%20&%20V%20=%206
Steady's thread.