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benign parathyroid tumour...
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Thanks 40 minutes! Tickets arrived yesterday, so all set to start packing at the weekend. Up to oncology today for blood test results and discussion about what happens next.
TSH: 0.02 and in the consultant's words, beautifully suppressed
T4: 35.8, which is not as good, it should be closer to 26, could be up to 30 at a pinch. He checked whether I've changed thyroxine brand (No) so I'm repeating the TFT in a month, and if it's still high he might consider reducing my dosage.
He went through prospective management after the Tg test at the end of September, so I know what to expect then, and has re-booked me for another 4 month check up. No mention of my ECG, so I'm assuming it's either OK or not been reported on yet. Echocardiogram next Wednesday, preceded by chat with specialist nurse.
In and out of outpatients within 10 minutes, bang on time.
Kwilter - you're becoming the expert patient
(which is good)
Good news.....I think
Results are in from cardiology. They found a heart after all
Luckily for me, one that's entirely normal and fully functioning.
Had bloods taken last week, so expecting a phone call from nuclear med to discuss thyroxine dose any day soon.
Finally persuaded one of the GPs to start me on anti Ds...he seemed surprised I wasn't on them already, but this is the 4th time I've asked. I've been on them nearly 2 weeks and haven't shouted at anyone from management yet
The latest news from here is I have to repeat the radio iodine in November. Blood results were 12, after 10 in June. Not sure what these values are, but I know this one should be as close to 0 as possible. I'll have to stop my thyroxine in the middle of next week, and start back on the tri-iono-something, then come off that totally 10 days before the RAI.
I know around 20% of thyca patients have to repeat the RAI, so not totally unexpected, but not the news I was hoping for either.
Still, I'm going to be a shoe in for "best zombie" impression at Halloween.
Won't be Slogging either as will be asleep. First person to mail me gets the number.
Aw Kwilter - I'm so sorry. I'm sure you're rationalising correctly in terms of the 20% but it's still holding you back from moving on and putting this behind you. I felt carp just reducing my drugs by 25mcg this summer so you must be dreading the removal altogether
hey Kwilter sorry the news isn't what you were hoping for, sounds like you are being stoic, hugs to you xx
Chance to run through a freezing cold bog?....no thanks
Hi Kwilter
Sorry to hear the medical progress isn't zooming ahead quite as quickly as you deserve, but how was the holiday?
Thanks people! I'm gutted I won't be Slogging, almost as much as coming off the tablets. I slept reasonably well last night all things considered, just having odd baseball dreams. Off to work shortly where I'm looking forward to telling my boss.
40 Mins, my holiday was fab, absolutely amazing, and we're now saving to go back sometime.
I don't feel stoic, so I'll be back on here whinging for Britain, I'll try and keep it to this thread and not pollute evrything else I post on.
That's a real shame about the Slog, Kwilter, I was looking forward to seeing you.
Actually I think you're very stoic, and you certainly don't whinge. Keep us updated please dear heart.
Kwilter - you are stoical. It would be easy to forget you're dealing with this because you barely mention it
Pollute the kitchen any time as far as I'm concerned (but ask the chef first
) I also understand that compartmentalising it means you can forget it elsewhere?
*brings kitchen love to the thread*
Kwilter the kitchen doesn't have rules about only posting jolly stuff, god knows it would have shut years ago from all my rantings and gnashing of teeth,you post and rant and fall asleep wherever the hell you want too
I've stocked up on tea and jaffa cakes and have made you a quilting corner
big hugs
I look forward to supporting with you at Sodbury
Kwilter if the kitchen only allowed us to post happy stuff then you'd know nothing about my work stress, Ginger turning up her toes whilst Blouse was away or my endless house-bashing, and it would have meant that I couldn't have grabbed on to the lifeline of you lot a couple of weekends ago.
I'm really sorry to hear you're having another round of it. Hang in there, hon, and please keep us posted, your friends want to know how you are xx
And so say all of us! Crikey, you put up with my whinging about the WW!
Really feel for you Kwilter (and Rattler too!) Hope you're on the mend soon.
How's my Quilt coming on btw?!!
Only joking! Get better soon. Lots of loverly grub in the kitchen for you! Mwah X And please keep us posted, good, bad or indifferent.
And I am going to have to put my already stupidly gangly arms on a rack and stretch them all the way down to Devon to give you a huge hug, Kwilter. I'm so sorryt he news wasn't what you were hoping for, it's not nice to have your expectations rasied and lowered again. You are more than entitled to gnash, scream, moan and whinge, we are all here to give our love and support. xx
Just realised I haven't said a huge thank you on here to those forumites who sent me a lovely bouquet of flowers yesterday. It was both unexpected and unnecessary, but very welcome.
Thank you all, I'm very lucky to have such good friends. They've cheered me up on what was otherwise going to be a bit of a low weekend.
Current update is I stopped all medication today. Work wasn't too bad all things considered (office manager on leave, colleague who normally does ordering is on half time as her hubby came out of hospital on Wednesday followiing a triple bypass), although I shouted at one of the drivers who pished me off big style.
I've bailed from swimming with the children tomorrow as well and cut right back on housework, although that might not have anything to do with my tablets
How long are you off the drugs for ?
I'm not sure, I think last time I started them on the following Monday after a whole body scan. I'll ask when I go in on the 30th.
I've not yawned so much for ages.
Long enough eh!
Not a good time of year to be energy depleted